Information de reference pour ce titreAccession Number: | 00126350-200109000-00002.
|
Author: | Delbanco, Tom MD 1; Berwick, Donald M. MD 2; Boufford, Jo Ivey MD 3; Edgman-Levitan, S. PA 4; Ollenschlager, Gunter MD 5; Plamping, Diane PhD 6; Rockefeller, Richard G. MD 7
|
Institution: | (1)Harvard Medical School, Beth Israel Deaconess Medical Center, Boston, USA (2)Institute for Healthcare Improvement, Boston, USA (3)Robert F. Wagner School of Public Service, New York University, New York, USA (4)The Picker Institute, Boston, USA (5)Agency for Quality in Medicine, Cologne, Germany (6)Tower Hamlets Community Healthcare NHS Trust, Mile End Hospital, London, UK (7)Health Commons Institute, Falmouth, ME, US
|
Title: | Healthcare in a land called PeoplePower: nothing about me without me.[Editorial]
|
Source: | Health Expectations. 4(3):144-150, September 2001.
|
Abstract: | In a 5-day retreat at a Salzburg Seminar attended by 64 individuals from 29 countries, teams of health professionals, patient advocates, artists, reporters and social scientists adopted the guiding principle of 'nothing about me without me' and created the country of PeoplePower. Designed to shift health care from 'biomedicine' to 'infomedicine', patients and health workers throughout PeoplePower join in informed, shared decision-making and governance. Drawing, where possible, on computer-based guidance and communication technologies, patients and clinicians contribute actively to the patient record, transcripts of clinical encounters are shared, and patient education occurs primarily in the home, school and community-based organizations. Patients and clinicians jointly develop individual 'quality contracts', serving as building blocks for quality measurement and improvement systems that aggregate data, while reflecting unique attributes of individual patients and clinicians. Patients donate process and outcome data to national data banks that fuel epidemiological research and evidence-based improvement systems. In PeoplePower hospitals, constant patient and employee feedback informs quality improvement work teams of patients and health professionals. Volunteers work actively in all units, patient rooms are information centres that transform their shape and decor as needs and individual preferences dictate, and arts and humanities programmes nourish the spirit. In the community, from the earliest school days the citizenry works with health professionals to adopt responsible health behaviours. Communities join in selecting and educating health professionals and barter systems improve access to care. Finally, lay individuals partner with professionals on all local, regional and national governmental and private health agencies.
(C) 2001 Blackwell Science Ltd.
|
Author Keywords: | electronic medical records; employee satisfaction; patient satisfaction; shared decision-making; volunteerism.
|
References: | 1 Ryback TW, Fox S, Ryback ML. The Salzburg Seminar: the First Fifty Years, 1st edn. Salzburg, Austria: The Salzburg Seminar in American Studies, 1997.
2 Kane B, Sands DZ. Guidelines for the clinical use of electronic mail with patients. The AMIA Internet Working Group, Task Force on Guidelines for the Use of Clinic-Patient Electronic Mail. Journal of the American Medical Information Association, 1998; 5: 104-111.
3 Slack WV. Cybermedicine. How Computing Empowers Doctors and Patients for Better Health Care, 1st edn. San Francisco: Jossey-Bass, 1997.
4 Rind DM, Davis R, Safran C. Designing studies of computer-based alerts and reminders. MD Computing, 1995; 12: 122-126.
5 Neame R. Smart cards - the key to trustworthy health information systems. British Medical Journal, 1997; 314: 573-573.
6 Rind DM, Kohane IS, Szolovits P et al. Maintaining the confidentiality of medical records shared over the Internet and the World Wide Web. Annals of Internal Medicine, 1997; 127: 138-141.
7 Mandl KD, Katz SB, Kohane IS. Social equity and access to the World Wide Web and e-mail: implications for design and implementation of medical applications. Proceedings of the AMIA Annual Fall Symposium, 1998: 215-219.
8 Barzda L. A voluminous library for what ails you. New York Times, Connecticut Section, 1999; 4 July.
9 Rockefeller R. Informed shared decision-making: is this the future of health care? Healthcare Forum Journal, 1999; 42: 54-56.
10 Cleary PD, Edgman-Levitan S. Health care quality. Incorporating consumer perspectives. Journal of the American Medical Association, 1997; 278: 1608-1612.
11 Gerteis M, Edgman-Levitan E, Daley J, Delbanco TL. Through the Patient's Eyes: Understanding and Promoting Patient-Centered Care, 1st edn. San Francisco: Jossey-Bass, 1993.
12 Werdal L. Through the patient's eyes. The Planetree experience at Griffin Hospital. Healthcare Forum Journal, 1995; 38: 35-38.
13 Mullan F. Sounding board. Community-oriented primary care: an agenda for the '80s. New England Journal of Medicine, 1982; 307: 1076-1078.
14 Delbanco TL. Enriching the doctor-patient relationship by inviting the patient's perspective. Annals of Internal Medicine, 1992; 116: 414-418.
15 Cahn E, Rowe J. Time Dollars: The New Currency That Enables Americans to Turn Their Hidden Resource - Time - Into Personal Security and Community Renewal, 1st edn. Emmaus, Pennsylvania: Rodale Press, 1992.
16 Berwick DM. The total customer relationship in health care: broadening the bandwidth. Jt Comm Journal of Quality Improvement, 1997; 23: 245-250.
|
Language: | English.
|
Document Type: | Viewpoint.
|
Journal Subset: | Behavioral & Social Sciences.
|
ISSN: | 1369-6513
|
NLM Journal Code: | dzo, 9815926
|
Annotation(s) | |
|
|